Much of the material referenced here have been written by laryngectomies.
I LEFT MY VOICE ON THE DINING ROOM TABLE
by Pat Wertz Sanders
Publication Date: May 23, 2014
“This isn’t a book about a courageous fight against cancer or a triumphant tale of survival. Instead, it’s a matter-of-fact glimpse at the world of a very specific cancer with the intention of educating patients, caregivers, family members, and even the medical community. It is packed with useful tips for those who are battling throat cancer and who need to understand what normal will look like for the rest of their lives.”
Amazon has both Print and Kindle Version
Barnes & Noble has Print and Nook Version
LOOK WHO’S TALKING; A GUIDE TO ESOPHAGEAL SPEECH
by Jack Henslee
Back in 1991-1992 I published a book on esophageal speech titled “Look Who’s Talking.” For a few years it was issued to incoming students at the IAL Voice Institute and enjoyed 2 printings over the years. However with the gaining popularity of TEP speech, interest sharply declined and the cost of publishing became prohibitive so it went out of print. Through the years I continued to get scattered requests for a copy which I filled with a very limited inventory I had left.
Inspired by Pat’s great book I decided to do some minor updates and make it available online as a digital version which is now available on Amazon for the Kindle or other options with the FREE Kindle app for smartphones, tablets and computers. If interested you can find a copy at
Amazon has both Print and Kindle Version
V! THE FIVE BASIC ELEMENTS OF A LIFE WELL LIVED:
Read it in a day … Live it for Life
by Bob Keiningham
Our WebWhispers member, Bob Keiningham has just announced that his book has been published and you may read about it or buy it on Amazon in paperback form.
Ernest Hemingway said, “Easy reading is damn hard writing”. Writing a huge book that contained everything I had learned about success in every area of life was easy because I had lived it, but “trimming the fat” for a fast paced book you could easily read in one day took years. I started writing it on my fiftieth birthday and turned seventy-eight the year it was published.
WORTHY OF TRUST AND CONFIDENCE
Donald Brewer has a B.A. from Furman University and an M.S. in Criminal Justice from Georgia State University. He is a member of the Association of Former Agents of the United States Secret Service, the National Association of Eagle Scouts, the National Association of Peruvian Horses of America, and the Cataloochee Ranch Dinosaur Club.
Don is a throat cancer survivor, and after 10 years, has been declared cured. Such victories do not come without a price; Don now speaks with an electronic artificial larynx. The couple split their time between St. Simons Island, GA, and Cotopaxi, Colorado.
You can read about Don and the book at:
Whispers on the Web also has an article about Don at:
Self Help for the Laryngectomee (The Blue Book)
Written by Edmund Lauder, Edited by Jim Lauder
For many of us, this became our one and only reference book and was well read and thumbed through daily as we learned. This will help you really understand becoming and learning to live as a laryngectomee.
PDF copy of book has been donated by Lauder Enterprises. Download is FREE.
FLYING ON ONE ENGINE – Documentary film
The film follows eight-time Nobel Prize nominee Dr. Sharadkumar Dicksheet as he battles failing health and performs marathon operations to cure Indian children of their cleft lips and other deformities. Wheelchair bound, without a larynx, and diagnosed with a life-threatening aortic aneurysm, Dr. Sharadkumar Dicksheet lived only so he could travel to India to perform free operations in marathon-like surgery sessions where up to 700 children receive treatment for their cleft lips and other deformities. Although Dicksheet survived off of social security while living in his Brooklyn apartment, his life is drastically different in India where the eight-time Nobel Prize nominee is treated like a living god. FLYING ON ONE ENGINE shows how this quirky, funny, and sometimes difficult character overcomes his own ailments by curing others.
All information about the DVD release can be found here:
From the UK, a Free Book for all laryngectomees in the UK
Our aim is to promote and assist the relief of all people in the UK who have had a laryngectomy – This includes our FREE book
‘Laryngectomy is not a Tragedy’
by Sydney Norgate and Dr Nicola Oswald MBChB.
Resource for New Larys – “First Steps”- Revised
The IAL has recently posted on line a comprehensive revision of a very old ACS-funded booklet, “First Steps.” Clubs will want to download it and print it out. It is designed for those facing laryngectomy surgery and for new larys and their caregivers.
The 20 page publication (plus covers) includes the major issues that new larys face. The publication features some brand new graphics (including 2 color drawings that symbolically represent the work that we all do) that are integral to the booklet and the content it teaches. This suggests the need for the best quality reprints. This can be obtained by downloading the PDF from the IAL website Newsletters and Documents section and printing it out on a LASER printer.
This project was done at almost no cost to the organization (and that money was donated) and with the broad involvement of ENTs, SLPs, former and current BOD members, and others. David Blevins in VB,VA
“The Laryngectomee Guide”
The guide is available for free viewing and download on my blog: http://dribrook.blogspot.com/ Itzhak Brook MD
The Guide provides practical information that can assist laryngectomees and their caregivers in dealing with medical, dental and psychological issues. It contains information about the side effects of radiation and chemotherapy; the methods of speaking; airway and stoma care, and voice prosthesis. In addition it addresses eating and swallowing issues, medical, dental and psychological concerns, respiration and anesthesia, and traveling as a laryngectomee.
This is Dr Brook’s second book. His first was My Voice and is also available on his website.
Recommended by Carl Strand from Luminaud.com
“Why Didn’t They Tell Me?” written by Donald G. Moss and published by Luminaud.com is an excellent beginners guide. I always have a few on hand and give them out along with Lauder’s “Blue Book”.
“Voice Restoration for the Laryngectomized” by Jim Sansing and published by Luminaud.com is a considerably more advanced text, suitable for Speech Pathologists and well rehabilitated Laryngectomees. This may not be suitable for the casual library, but is a solid work with tips and techniques. I have a copy of this and it’s helpful when you’re looking for word lists, etc.
In their catalog, they have listed:
Why Didn’t They Tell Me?
Self Help for the Laryngectomee
Mamaw’s New Voice
Papaw’s New Voice
Stuttering, Science, Therapy and Practice
Alaryngeal Speech Rehabilitation
Voice Restoration for the Laryngectomized
When you are translating with a computerized translator, the word it selects may not have quite the same meaning as intended by the original, and because phrasing is not changed, it may be misunderstood. Be careful especially if you are translating medical text or explanations.
Translates text and web pages from one language to another, including
English, German, Spanish, French, Italian, Portuguese, and Russian.
ACS in Asian Languages
For those of you interested in cancer care and who care for patients
who speak Asian languages, see Cancer Information Translated Into Asian
Languages. The Asian Pacific Islander Cancer Education Materials Tool
offers healthcare information translated into various Asian languages.
The site was produced by the American Cancer Society and the Asian
American Network for Cancer Awareness, Research and Training.
International Association of Laryngectomees (IAL)
Toll Free: (866) IAL-FORU (425-3678)
Website at: http://www.theial.com; EMail: IALHQ@TheIAL.com.
Point of contact for IAL/ACS publications relative to laryngectomees, Annual Directory of local, IAL-affiliated clubs and support groups, Directory of Alaryngeal Speech Instructors, IAL NEWS (published Four times a year).
NATIONAL CLEARINGHOUSE OF REHAB TRAINING MATERIALS (NCRTM)
New Editions Consulting Inc.
103 W. Broad St., Suite 400
Falls Church, VA 22046
A choice of reading materials, including hints and suggestions from our membership may be found under Library Resources Section.
Whispers on the Web
Our monthly newsletters are listed here by date and the Index for each newsletter will help you find the informative articles you look for. These are written by Professionals, Laryngectomees and others on many different subjects relating to larynx cancer and rehabilitation.