|Name Of Column
||Messing, Farrell, Dietrich-Burns
||Part I: Pneumatic Artificial Larynx
||Discussion Thread- Oral Cancers
|News, Views, & Plain Talk
||Comments About A Long Storm
||Inside - Outside
|Bits, Buts, & Bytes
|Welcome New Members
||News & Events
Murray's Mumbles ... Musings from the President
There will be no "Murray's Mumbles" column this month.
Our WebWhispers President, Murray Allan,
underwent two pretty tough spinal surgeries in September and is still in the
recovery process. WW members wish Murray a speedy and complete recovery and
look forward to his return to "duty" and to "Murray's Mumbles".
? 2004 Dan H. Kelly, Ph.D. ]
coordinated by Dr. Dan Kelly,
Retired Associate Professor
( email@example.com )
Department of Otolaryngology, Head & Neck Surgery
7700 University Court, Suite 3900, West
Chester, OH 45069
? September 2004
Barbara P. Messing, M.A.,
Katie Dietrich-Burns, M.S., CCC-SLP,
First in a Three Part Series:
Foundation Skills for the
Part I: Pneumatic Artificial
Stephanie Farrell, M.A., CCC-SLP, Katie Dietrich-Burns, M.S., CCC-SLP,
Barbara P. Messing, M.A., CCC-SLP. All authors are affiliated with the
Milton J. Dance Head and
at the Greater
connects us to our families, friends, and others in our daily lives. Losing the
ability to produce voice is a devastating life event. If communication options
are not made available to the laryngectomized patient then feelings of social
isolation may lead to depression.
It is important for the
patient to receive pre-surgical counseling to discuss their communication
options which vary from artificial larynges to tracheoesophageal voice and
standard esophageal voice.
Post surgery, the Speech Pathologist and the patient will begin the
rehabilitation process. Initial steps include introducing the patient to the
different types of communication methods and beginning instruction and practice
on the chosen method(s). The Speech Pathologist must stay informed on all
available communication options to optimally meet the patient?s communication
The series will highlight
the instructional necessities of training artificial larynx using the protocol
outlined by Shirley Salmon (1983). Using the mnemonic I PAT PAL, Dr. Salmon
describes the important elements and hierarchy of teaching patients how to use
an artificial larynx with the intent of maximizing speech intelligibility (see
Figure 1). Information on the various artificial larynges must be proved to
patients. Placement is addressed so the patient is not only consistent but also
accurate in placing the device. Articulation work enhances speech
intelligibility. Timing (on/off voicing) addresses the need to be able to turn
on and turn off voicing appropriately for improved speech intelligibility. Pitch
work allows the speaker to produce voice that is more gender appropriate given
device limitations. Patients often have their own personal preference on
acceptable pitch levels. Lastly,
variations provide the patient with a way to voice at an appropriate volume
level for the conversational situation or occasion.
Figure 1. Instructional Method for Teaching Use of an
I = Information. The patient is informed on benefits of
artificial larynges and selection of the proper device. Influential factors:
purchase price and upkeep, availability, possible modifications, expediency,
post-operative complications, patient preference.
P = Placement of the device to achieve. For example, with
artificial larynges, the ?sweet spot? is the place in at the best clarity of
sound and resonance is achieved. With intra-oral devices appropriate
placement of the intra-oral tubing is discussed.
A = Articulation. Shaping sounds into speech using the
articulators for precise sound production. Over articulation or exaggerated
movements of the articulators is often recommended to increase speech
intelligibility level. Placement of the artificial larynx should favor lip
T = Timing. Appropriate ?on-off? timing consistent with
syllable initiating and releasing, positions of phonemes in words and phrases
results in optimum sound production and greater speech intelligibility
PAL = Pitch and loudness. Modify pitch to more closely
resemble gender appropriate pitch level. Loudness ? volume should be adequate
for the communication setting. Changes in one will usually show changes in
(S.J. Salmon, Ph.D., 1983)
This is part one of a three
part series to provide information on the various types of Artificial Larynges.
This article will focus on lung powered, intra-oral artificial larynges known as
A ?pneumatic? artificial
larynx is designed to use lung air for sound generation through an external
device. Pneumatic devices require some form of coupling the device with the
tracheostoma. Upon exhalation, lung air travels through the cup-like (rubber or
metal) attachment device covering the tracheostoma. The lung air continues to
travel through a cylindrical vibrating chamber where the sound is ?generated?.
The sound is transferred through an external tube positioned in the oral
cavity. It is classified as an intra-oral device because the tube is placed
into the mouth. The laryngectomee then shapes the sound into words for speech
Instruction on the use of a
pneumatic artificial larynx using the ?I PAT PAL? method:
I = Information. The
patient is informed on benefits of a pneumatic device as well as other
artificial larynges. The patient is then able to make an informed decision on
proper device selection. The discussion should include: device costs,
availability, model options (Tokyo vs. Tone Air II), design differences between
models and purchasing information. Ideally, the Speech Pathologist will have a
demonstration device or a device for purchase.
P = Placement of the
device to achieve. Demonstrate coupling the device to the tracheostoma with
and without proper placement. Strive for good seal with tissue.
placement. Practice placement of the intra-oral tubing inside of the
mouth for good sound resonance. Demonstrate the tube directed toward the
middle of the palate for optimum resonance. (S. J. Salmon, Ph.D., 1983)
A = Articulation.
Placement of the artificial larynx should favor lip reading. Instruct the
patient to place the intra-oral tubing towards the side of the mouth rather than
towards the midline of the palate. This will better enable the listener to pick
up cues from lip reading and improve speech intelligibility level. Position the
intra-oral tubing to the side of the oral cavity without obstructing the tongue
tip. Other considerations for improved speech intelligibility would be to check
for appropriate fit of dentures and assess the patient?s oral motor skills with
respect to strength and range of motion of articulators.
Over articulation or
exaggerated movements of the articulators is often recommended to increase
speech intelligibility level. (S.J. Salmon, Ph.D., 1983). Articulatory
precision is accomplished through structured exercises targeting
voiced-voiceless cognates at the word, sentence, paragraph and conversational
speech levels. Exaggerating articulatory movements is often necessary to
improve speech intelligibility. A slow, yet natural rate of speech should be
T = Timing.
Battery-operated artificial larynges were designed with an on-off switch. There
is no ?on-off control? on a pneumatic device. Instruction with on-timing of a
pneumatic device should include: coordinating the timing of placement of the
intra-oral tube in the mouth whilst coupling the device to the tracheostoma with
exhalation for initiation of voicing. Voicing begins, or on-time occurs, as the
patient exhales. Pneumatic devices require sufficient lung capacity to activate
the vibratory membrane and produce a sound of sufficient duration for
Off-timing with a pneumatic
device occurs when the patient ends a word or phrase. Instruction on off-timing
should include teaching the patient to break the coupling with the tracheostoma
or stop exhaling into the stoma cup at the ends of phrases or sentences.
Undesirable sound generation will occur if the patient continues to
exhale after speech is stopped and the device remains in place.
On-off timing too rapid. Staccato speech pattern may occur if the patient voices
each word individually. Practice exercises should focus on natural phrasing.
To speak with a more natural pattern of production, the patient should briefly
cease exhalation between phrases. (Minnie S. Graham, Ph.D., 1997).
PAL = Pitch and loudness.
A modification of pitch in a pneumatic device as well as all AL?s is done in an
attempt to match the patient?s voice more closely with their gender appropriate
pitch level. Loudness ? volume should be adequate for the communication
setting. (S.J. Salmon, Ph.D., 1983).
Initial set-up of the pneumatic
device should include modifying the pitch/fundamental frequency by changing the
width and thickness of the rubber vibratory membrane. Using a thicker, wider
rubber membrane will yield a lower fundamental frequency tone as compared to a
thinner, tighter vibrating member that will produce a higher tone. As with
esophageal and tracheoesophageal voicing the patient who uses a pneumatic device
generally produces a ?hoarse?
Volume range for the
pneumatic device is quite good since sound is produced from lung- powered air.
Less expiratory volume of air results in a softer volume. A person can go from
a whisper to a shout depending on the volume of expired air they choose to
produce. In comparison to battery operated, neck and intra-oral artificial
larynges there is no mechanical background noise when speaking with a pneumatic
Variations in both pitch and
loudness can also be accomplished by varying breath pressure. Changes in one
(pitch or loudness) will usually show changes in the other.
of Pneumatic Devices
There have been numerous
variations and modifications to the pneumatic type of artificial larynges over
the years. The initial prototype dates back to the late 19th century
when a Vienna surgeon named Julius Hochenegg fashioned an artificial larynx that
used air from a bellow positioned under the patient?s arm-pit. (Henslee, J.)
Over the years various
types of pneumatic artificial larynges were developed and redesigned. The
devices available today are the Tokyo Artificial Larynx and the ToneAire II
Tokyo Pneumatic Artificial
The Tokyo Artificial Larynx is made of chrome plated brass for
the tracheostoma attachment and a cylindrical housing with a rubber diaphragm to
generate sound. This is attached to air tube for mouth placement.
Reprinted with permission from
Mark Welch, Limco Solutions, Omaha, NE
Pneumatic Artificial Larynx
The ToneAire II
Pneumatic device is available from Communicative Medical.
Reprinted with permission from
Communicative Medical Inc,
Tokyo, the ToneAire II uses lung air to generate a sound from a rubber membrane
or diaphragm. A tube is attached to externally transfer the air from the lungs
to the oral cavity for speech production.
Reprinted with permission from
Communicative Medical Inc,
How much do pneumatic artificial larynges cost?
Artificial Larynx package costs approximately $160.00 and the ToneAire II costs
approximately $86.00. They are relatively inexpensive as compared to the other
artificial larynges which range from $375.00 to $700.00. The other cost
savings with the pneumatic devices is that batteries do not need to be purchased
Advantages and Disadvantages of Pneumatic Artificial Larynges
The advantages of
pneumatic devices are as follows:
simple in design
limited number of parts
requires no batteries
?hoarse? voice rather than a
mechanical sounding voice
disadvantages of pneumatic devices are:
external tube wide in
An initial period of
practice is required to learn to use the device as with all communication
options available to the patient.
saliva will clog the
air tube frequently.
One or two hands
required to work the device. The patient must hold the attachment over the
stoma when speaking and sometimes hold the air tube in the mouth.
choices made by the laryngectomee must be selected with consideration of their
daily communicative needs, financial situation, lifestyle and patient
preference. The pneumatic artificial larynx offers the patient an excellent
option for use either as a back-up or primary communication tool. The
attractive features are low device cost, durability, low maintenance, simple
design and excellent voice quality.
Part two of
this three part series will discuss intra-oral artificial larynges.
Graham, Minnie, S. The
Clinician?s Guide to Alaryngeal Speech Therapy,
Keith, Robert, L. Darley,
Frederic. L., Third Edition, Laryngectomee Rehabilitation, Austin, Texas,
Salmon, S. J.
Post-Laryngectomy Rehabilitation. Help Employ Laryngectomized Persons: H.E.L.P.,
Unit 7, Using the Artificial Larynx: A Presentation on Instruction. Indiana
University School of Medicine, Medical Educational Resources Program, 1983.
Contributions from Members
Since our archives for the WebWhispers list is saved for only a year, we lose
being able to refer back to discussions threads that are very informative. Here
is one that took place back in October, 2002. It started under one title
and continued under another but you can read it straight through here.
A WW Discussion Thread on Oral Cancers
Just had a phone call from a friend whose husband turned up with a little
blood in his mouth in the morning for several days, and then noticed a lump in
his throat. His pcp referred him to someone at a local hospital who did a CT
scan and said "it is a growth at the base of the tongue and if it is cancer it
would be inoperable, so we'll do a biopsy next week and then meet a week after
that to start treatments." They were, of course, panicky with such a negative
prognosis before it was even biopsied. They further came away with the idea that
if they did radiation there could never be any surgery. And felt that they
weren't even going to have a say about what treatment they would have done, if
They feel a lot better now having talked with us, but I wondered if anyone
else was hit with something like this in the beginning. (I do believe, however,
that if an ENT sees something he "thinks" is cancer, it usually is) I guess it
is a fast growing thing, which Bob's wasn't, but "inoperable"? Come on! They are
now going to call one of Bob's surgeons at MEEI to set up a date hopefully for
him to do the biopsy and take over. Just wondered if anyone had a "base of the
tongue" problem and what you went thru before landing on WebWhispers. They need
all the survivor information they can get at this point.
I had a my vocal chords removed and a right neck
dissection. they also took half my tongue..... ouch..... some folks have there
tongue remove all together..... I think Dr. Singer or Haymaker have done
reconstruction to build a new tongue. Having even part of your tongue removed
makes it very difficult to talk.... but you can.
Also my soft palette was removed. I haven't been able
to use any of the speaking aid device effective enough so people can understand
me. It has now been over 5 years, with pen and paper. Peace V
I had part of my tongue removed as well as my soft
palate, and found that the lack of a soft palate had a far greater negative
impact on intelligibility: the harshly nasal sound produced in the absence of
the soft palate totally overwhelms everything else and destroys intelligibility.
I was able to be fitted with an obturator - essentially an upper denture-like
device with a plastic plug that extends back into the throat and closes the gap
where the soft palate was - and it made a world of difference. It takes a bit of
searching to find someone who can construct one, or even knows what it is, but
the results are well worth the effort.
I had one for a while, in fact I think I still have it some where, but with
all the radiation I had, my mouth kept changing and it wasn't working properly.
Plus I can only open my mouth about a 1/2 inch and when I could manage to get it
in, it hurt like hell. I might have tried to keep having them fine tune it, but
my insurance was not covering it at the time, the doctor was 3 hours from my
home and I couldn't drive out of town alone. Then my wife was working part time
and going out of town to college, and I was staying home, taking care of the
house, watching out 3 kids, ages 3, 9,12.
Now I'm getting all of my treatment at the VA and can drive again, maybe
they will want to try fixing up my mouth again, or at least I'm hoping for some
help with getting a lightwriter. All the years of surgery's, chemo, radiation,
other treatments, and all the trips to different hospitals and clinics got to me
and I don't know how much of that I am willing to go through again. I guess time
will tell. I'm going to be 53 the end of this month and I kind of feel like I
should be 73. Thanks Tom for you input. God Bless. Peace V
I know what you mean, you get to a point where you have
to balance the pros and cons, and then maybe decide that enough is enough, or at
least that it's time to step back for a bit and take a break; there are worse
things than being mute, and it sounds as if you managed pretty well. I had my
one successful obturator made after my first cancer of the throat when I was
relatively young, before I got the unrelated laryngeal cancer 10 or so years
later. It seems like the making is an art rather than a science, the doctor who
made it was a faci-maxillary something or other (long title), and he was
associated with a large teaching hospital; which is no guarantee, I spent six
months commuting back and forth from world-renowned Sloane-Kettering hospital in
New York City and ended up with a piece of junk; which is not to denigrate
Sloane-Kettering, I'm sure it's a fine hospital, it was the luck of the draw, or
timing or something else. So it's a matter of luck and/or persistence; maybe if
you get your second wind or just happen to run into someone, or hear about
someone who knows someone, etc., ; sometimes life works out that way. In any
case, the best of luck whatever you decide, and keep contributing to the group,
we're all in this together. By the way, I also had part of my jaw removed along
with the soft palate and part of my tongue, and could barely open my mouth
post-op. They gave me this little plastic stubby screw (pink) about 2 inches
long with a tab on the end that I was to use every day, the idea being that you
literally screw/jack your mouth open; my first impression was that is was a
medieval instrument of torture, that it was some kind of cruel joke, but it made
surprisingly good sense. I'm not really sure how much it helped, but such was
the state of technology in 1987. Again, good luck and best regards,
----the doctor who made it was a faci-maxillary
something or other (long title),
The miracle workers are maxillo-facial prosthodontists. Dr. James Nethery, my
dental oncologist, was also a maxillo-facial prosthodontist. He made a palate
for a woman who had lost hers to cancer, and she immediately went from
unintelligible to speaking clearly with just a slight nasal twang, and she was
unbelievably pleased. I met her months later at a movie theater, and she told me
that if it hadn't been for Dr. Nethery, she probably wouldn't be there, or out
in public at all. Those people can do wonders for a patient's quality of life.
Thank you for your response. I have my tongue and soft
palate and know little of restorative efforts. It is just such a gift--to have
members with this information to share and educate. Janna
We agree with Janna. Having members and friends to write and share with each
other is a gift we give and a gift we receive just being part of the WebWhispers
Views, & Plain Talk
Pat Wertz Sanders, WebWhispers VP - Web Information
Some Comments about a Long Storm
I am one of the lucky ones who didn't get hurt or lose friends or pets or
houses or cars and do not presume to understand the horror and hurt others
have gone through.
Roger Jordan writes about leaving Biloxi and going to Chattanooga but Ivan
followed. How do you get away from a storm the size of Texas that is
relentless in it's march through one state after another, spinning off
tornados from it's edges and keeping it's strength long after it should have
settled down to just a bad storm. It was windy and wet everywhere. Scary with
the wind gusts and the trees swirling. A friend had a neighbor's tree to come
down on her house and has been told they don't know when the insurance company
can send someone because of all the calls. I imagine the roofers and all other
workmen will be the same. And, the damage in this area was nothing compared to
Judy Ramboldt was going to write something about living through the storms and
here is she emailed about that: "Too many of our friends had bad luck with
Ivan. I was going to sort of put a fun-exciting spin on the article. Cannot do
that now. I do have a silly observation about being without power for a lot
of days. If anyone makes an artificial arrangement to be hung over the bed,
take care. I created a marvelous arrangement to be above our new bed with its
new headboard. I used sprayed eucalyptus as the base of the arrangement.
But.......the green eucalyptus does not like hot weather. What happened was
that the leaves started to weep with green color. I now have to repaint the
wall to cover the green streaks on my white walls."
Even those who came through these storms without damage to self and property
still have "green streaked" walls, gutters overflowing, unbelievable trash
down in their yards, leaks they didn't have before, water damage, stopped up
plumbing, power losses, freezers and refrigerators to be cleaned out, streets
flooded and closed, contaminated water in some areas. Preparations of bringing
in lawn furniture, plants and anything that might cause problems outside now
all have to be moved back.
I feel like I have been running a marathon. When I gave up on power and
decided to go stay with a friend who lived nearby, I had to pack a small bag,
close down the house, get someone to open my garage door because without
power, I cannot lift it, and drive carefully to my friend's. Traffic lights
were not working. (I saw more courteous drivers than I have seen in years!)
and stores along the way were closed. My power came back on later that night
and the following day, I had company who didn't have power at their home. We
take help when we need it and give it when we can.
The problem with power outages is so many things don't work that we normally
take for granted. A sort of funny one...some people are so used to their
portable telephones that need electricity that they had to be reminded that a
wired telephone would still work on their lines. What? A telephone that you
have to go to when it rings, one that doesn't walk with you all over the
Those of us who were inconvenienced are so fortunate that all we lost is the
cost in time, money and labor to do a clean up. Maybe sometime we can write
up suggestions about items that we, as laryngectomees, might have in our
supplies and medicine chests to make life easier for us in times of power
outage, contaminated water, and when stores are closed.
In the meantime, we'll remember the folks who had losses that cannot ever be
by WW Member Paul Galioni
Inside - Outside
A very good friend, since childhood, once said to someone in
high school so very many years ago, "How DARE you judge my inside by my
Over the years I have learned what he meant. I knew about his crazy mother
who would flip out at any moment and suddenly we couldn't spend the night -
let alone go over there. One day there was going to be a party and my
friend and his sister (my girl friend at the time) and I were going to be
getting the front room and living room ready.
Now this was a Victorian house that was built by one of the first judges to
sit on the California Supreme Court - and he built his home on a hill so
that it would overlook both the gold domed county courthouse in Auburn with
Lady Justice holding a gold leaf scale, but would also allow him to see the
glowing golden dome of the State Capital in Sacramento as the morning sun
caught it and it burst into golden glory. This was from the 'sitting room'
- which was just off the front steps and hallway of the Victorian. Across
the street was the railroad - the Southern Pacific Line - and down about a
half mile, the Auburn Train Station. In his days as a judge, he had the
power to simply put out a flag from a second story window and the train
would stop and he would be able to take the train directly to downtown
Of course, time took its toll on both the prestige of Supreme Court judges
but upon the wealth of those who accumulated so much during the boom of the
Gold Rush that the ending of that seemingly tireless stream of gold was
unimaginable - as unimaginable then as the scarcity of oil was in the
So my friend, his sister, and I were getting the house ready for some
partying. We had straightened up the sitting room and were working on the
living room, moving furniture around, splitting wood for fires in both fire
places -- in three hours we expected to have a nice party - of the 1960's
variety - the smoking was not cigarettes, though there was that too, and
both were done on the front porch overlooking Auburn and what was then a
Smokey and Smoggy Sacramento Valley.
Suddenly, into the house comes my friend?s mother and his brother with the
idea that there was a fortune hidden in the house. They were going to find
it. Chef?s knives and cleavers were first - they were plunged into all the
chairs and sofas and divans and window seats. Then came the crow-bars -
claw and straight - and then the hammers and axes and wedges. By this time
my best friend?s oldest sister had joined in and the youngest sister, my
sister?s best friend, had fled the house for our house.
From the outside the house looked like a fairy tale of Victorian ginger
bread, wrap around porches, small porches off the corner turrets almost
hidden in the ginger bread decorations, and facing North and South were
great gables and turrets from the third story where there was a single room,
the size of the entire house, floored with virgin California Black Oak.
From the great gables one could look across the American River Canyon and
see the mountains of Lake Tahoe - but more importantly - look upon the lode
mines which made the occupants of the house so very wealthy.
The lawn leading up to the home was terraced and planted with roses and
herbs and grasses which gave hidden coves with stone benches and bird
baths. There were four terraces to reach the bottom of the Entry Stairway
which went up fifteen feet, had a landing, and then continued up another
twenty feet or so to the porch proper. The house was the standard Victorian
white and would, on those amazing autumn days, reflect the colors of sunrise
or sunset. It had an attic large and tall enough to serve as a dance floor
should the occasion ever arise, which it did every few months for the
various holidays. It was also a 'smoking room' for the men. The far side
had not one, but two slate billiard tables for only ruffians played pool.
The house was the embodiment of success and good living. Even in its
decline, it imbued an air of achievement, accomplishment, and ultimate
Inside that house my friend?s mother and his brother and his sister had gone
stark raving mad and were destroying it, literally, before our eyes. Axes
were taken to the hand sanded and stained oak and mahogany walls, the
polished floor boards were ripped up and thrown aside as the frantic seeking
of the imagined hidden treasure of Gold continued.
From the outside the house was the embodiment of Victorian Splendor. On the
inside it was the embodiment of the darkest Victorian Insane Asylum. The
scene being acted out was one of genetic necessity - not one of greed. It
was simply nothing more than my friend?s mother having one of her more
serious breakdowns and it threw the genetic switch in his brother and older
sister and they joined in, it was an orgy of delusional destruction where
the energy was synergistic - that is, each person gave each other person the
energy they received plus the energy they produced - so the whole of the
insanity was greater than the sum of its parts. Mother plus Son plus
Daughter was greater than the three of them acting on their own.
The three of us would have fled, but we had to stay there and warn off
friends and tell them that the party had been canceled - as if it weren't
obvious by the chairs hurled through the curved glass at the corners of the
sitting room and the insane chatter and laughter from within. My friend ran
to his father?s office to tell him ;the first thing to go was the phone
lines, and this being a family of great California lineage, using a
neighbors phone to call in the outbreak of an insane episode simply was not
done. And from his father?s office he was able to reach most of the people
we were going to smoke and party with that evening.
And so it is with us - we have outward appearances, and internal realities.
We hold images and embody them with great power - just as the Victorian that
my best friend grew up in was embodied with grace and power of a time gone
Even though the original builder and Supreme Court Judge might have been
somewhat more normal, he still had wood shipped from the interior of South
America, mirrors shipped from Europe - remember this is the 1850's - and it
was a crazy expense. And, he had married into a crazy family - the daughter
was crazy because early on it was her job to oversee the wash-room of the
mine her family owned and they used mercury to process the gold - so while I
have seen photographs of her, and can testify that she was a priceless
sterling princess made of Beauty itself - she was, by her early 20s
completely insane from the mercury which would always find it's way onto the
clothes of the miners - for in hard-rock mining even the clothes were washed
and sluiced and processed for gold dust - 'fines' they call them because
they are so small that only in the hand of an expert panner would you ever
recover the gold. In the end, she died of mercury poisoning, after being
confined for years to the 'downstairs room'. It was what we called it. It
had been, in effect, a confinement room for his great-grandmother and the
chains and cuffs still hung on the walls when each of us took our turn
living in the 'downstairs room' sometime or another in our youth.
My best friend?s mother came not from that kind of insanity, but from a
nearby family, also very wealthy and owners of several very well producing
mines. Her insanity was genetic. And every single child, my best friend
included, suffers from the same devastating internal devils and dragons.
And, yet, from the outside he is extremely attractive. So much so that he
spawns envy in many.
He is like the Victorian on Borland Avenue. It
looks beautiful, and we dream about having that Beauty.
Now in addition to his barely controlled madness he has the broken body of a
mid fifty year old contractor. He is not what he appears to be, so never
judge his inside by his outside.
Bits, Buts, & Bytes
Home Computer Security (A Personal Summary)
Over the past sixty days or so, I have encouraged our members to make sure
their systems are up-to-date and secure by (1) installing and using Antivirus
software, (2) installing and using Anti-Spyware software, (3) installing and
using an Internet Firewall, and (4) making sure their operating systems are
current (eg: Windows XP, etc.). Having done these things myself, you might be
interested to know what these steps have done for my systems (a desktop PC and
Norton Antivirus program now protects me from over 68,115 known viruses and
screens all out-going and incoming Emails, even those with attachments. Since
installing and using this system, I have NEVER contracted an Internet virus.
When I first installed "Spyware - Search & Destroy", I discovered that my
system contained over 250 spyware programs ... some good, but most bad
(unwanted). Using "Spyware - Search & Destroy", the number of spyware
programs has been reduced to under 10 - and all from companies with which I do
business and that support my interactions with them. In the eight weeks after
installing the free "ZoneAlarm" firewall, the software has "hidden" my PC and
laptop from Internet "bad guys" and stopped over 22,000 unsolicited
"intrusions", 380 of which were rated "highly suspect." Finally, my
installation of the
Windows-XP SP2 patch went relatively well. Both the
download and installation were easy and user-friendly. The only compatibility
problem I found was a small issue with Microsoft Money - which I corrected
using the hints provided on MSMoney's web site. In short, these steps made
sense for me and perhaps would make sense for you.
(2) Do you find using the "Google" or "Yahoo" search engines too
complicated or too comprehensive? A new search engine, four years in
development, debuted on the Internet on 30 September 2004. It is called
"Clusty" -- because it "clusters" its results in a way that may help users
find what they are looking for. If you get a chance, you may
wish to check out this new search engine at:
(3) The Latest Urban Legends, Email Rumors, Internet Hoaxes, etc.
Courtesy of "Urban Legends & Folklore":
below are some of the major new ones that surfaced during September 2004:
I Can Read Your Mind!
Here is a well-traveled card trick/mindreading illusion that has popped up
again and again on the Internet. (Added 09/22/04)
Procter & Gamble Boycott (Homosexual Rights)
American Family Association email flier urges 'pro-family' readers
to boycott Procter & Gamble due to the latter's support for repealing
Cincinnati's anti-gay rights charter amendment. (Added 09/20/04)
T. Bubba Bechtol on the Torture of Iraqi
Email flier claims T. Bubba Bechtol, supposedly a part-time city
councilman in Pensacola, Florida, was ejected from a radio studio for remarks
defending the torture of Iraqi prisoners. (Added 09/13/04)
Hillary vs. Arnold
Did Hillary Clinton and Arnold Schwarzenegger exchange insulting
witticisms during a chance encounter at a party? (Added 09/10/04)
The Hands of God (Hurricane Charley Photo)
Emailed image purports to show the 'hands of God' in a cloud
formation associated with 2004's Hurricane Charley. (Added 09/07/04)
ListServ "Flame Warriors"
Terms of Importance
1. n. A hostile, often unprovoked, message directed at a participant of an
The content of the message typically disparages the intelligence, sanity,
or ancestry of the recipient.
2. v. The act of sending a hostile message on the internet.
1. n. One who actively flames, or willingly participates in a flame war ...
(Another Example Below) ...
Garble is a mystery: Is he a foreigner with only tenuous grasp of
Is his brain addled by some powerful drug? Does he suffer a serious
mental debility? Is he typing wearing a catcher's mit? Garble's rampant
typos, malapropisms and seemingly aggressive use of execrable
can't be explained merely in terms of poor typing skills or the
lack of a
spell checker. Even non-English speakers generally do a better
of punctuation grammar and capitalization, and Garble is all the
puzzling because if one goes to the trouble of wading through
of his messages a discernable idea will usually emerge.
For example, in a
forum discussion about a painting he might say,
"Sorry the picchr the har
is wrog. The culir. I liike the lips bot teh Paintng
is sucs". When
for his random capitalization Garble might
respond, "oPS i HITTED THE
CAPDLOCK". Not surprisingly, he drives us
all absolutely nuts, but he is
utterly impervious to any sort of correction
and if our attacks persist he
will sign off in a huff with something like,
"yuor forum si stupef. bYE!"
of Mike Reed
See more of his work at:
Welcome To Our New Members:
would like to welcome all new laryngectomees, caregivers and
professionals to WebWhispers! There is much information to be gained from the
site and from suggestions submitted by our members on the Email lists. If you
have any questions or constructive criticism please contact Pat or Dutch at
Take care and stay well!
Murray Allan, WW President
We welcome the 20 new members who joined us during
JoAnne Beecher - Caregiver
International Falls, MN
Annette Cartman - Caregiver
Sun City West, AZ
New York, NY
Bullhead City, AZ
Regina Kahnert - R.N.
Saint Clair Shores, MI
Kevin & Cindy Kucker
Teresa Loffer - Caregiver
Corofin, Co. Clare, Ireland
Richard Palmquist - Caregiver
Brandon Whitesides - Vendor (ATOS)
WebWhispers is an Internet-based laryngectomee support group.
It is a member of the International Association of Laryngectomees.
The current officers are:
Pat Sanders............V.P.-Web Information
Terry Duga.........V.P.-Finance and Admin.
Libby Fitzgerald.....V.P.-Member Services
WebWhispers welcomes all those diagnosed with cancer of the
larynx or who have lost their voices for other reasons, their
caregivers, friends and medical personnel. For complete information
on membership or for questions about this publication, contact
Dutch Helms at: firstname.lastname@example.org
The information offered via the WebWhispers Nu-Voice Club and in
http://www.webwhispers.org is not intended as a substitute for professional
medical help or advice but is to be used only as an aid in
understanding current medical knowledge. A physician should always be
consulted for any health problem or medical condition.
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WebWhispers Nu-Voice Club
is eligible to receive tax-deductible contributions in accordance with IRS
? 2004 WebWhispers
can be found on our