Our everyday activities for members

 

See upper right corner for "How to Join".  New WebWhispers members are automatically enrolled into the email list.  Forum is optional.

 

 

WebWhispers moderated Email list  for members only

 

Official List Basic Rules:

Members are expected to comply with the following guidelines:


ORIGINATING EMAILS (by members only)


Address to webwhispers@mail-list.com
Our list is plain text and will not accept attachments.


1. BASIC - Keep your message clearly stated, 'reasonably' brief and to the point but give enough information so we can understand the situation. When appropriate, use URLs (web site addresses) to direct members to other sites for information rather than copying masses of information that will go into everyone's computers.

2. SUBJECT - Your emails must have a subject that is descriptive of what you are sending. The computer returns those with a blank subject line or bounces those using the Digest # as a subject, and sends you a standard response regarding subject lines. We never see it.

3. NAME - We expect the courtesy of a signature from the person writing the message. Moderators will likely remind you with a note if you forget. Most members sign with name, year of surgery or where they live. This is permissible and appreciated. You may list your email address again if you wish. We will not allow your private addresses, telephone numbers or personal websites. Businesses (our vendor members) will be allowed their signature and website address. Volunteers with WW will be able to sign with their position and the WW email address, if needed.

4. COMMUNICATE CLEARLY - Use format of upper and lower case letters. A “spell-checker” is recommended and good grammar helps understanding. Please do not use all caps.

5. BE COURTEOUS AND POLITE - Treat others as you would want them to treat you. We are participating to learn, share, and have a constructive exchange of information.

6. PRIVATE MAIL - Send direct to the person you wish to reach with personal messages, holiday greetings, "thank you" notes, comments, or congratulations. Notices and letters of any kind which might copy your private mailing list to the entire WebWhispers list membership will be discarded. Remove our list address from your group mailings of the latest cartoons, jokes or stories.

 

REPLYING TO WW EMAILS:


Address to webwhispers@mail-list.com if it is for the entire list.
Address to the member 'only' if it is personal
.

Address to both if you are replying to the person's question with information that is also useful to other members. (Do not leave the other person's email on your answer as we all got the original question in the list)


When the original list message you are answering is sent back with your reply to the list, the computer will truncate it to no more than 5 lines. If it doesn't truncate, it will be rejected and you will need to clean it off and send your new message again. Be sure to check what is attached to your message before sending. You might “copy and paste” a short excerpt from the original email. That would be allowed.

 

POTENTIAL PROBLEMS TO AVOID WHEN SENDING EMAILS



1. Our system is set to accept only plain text and will reject attachments of any kind. The decorated stationery and figures will not come through and if they are “attached” or “embedded” in your email, your message could be lost. Do not send files or photos.

2. Do not forward emails containing multiple addresses, headers, footers, unreadable junk emails, chain letters, virus warnings, letters, jokes or stories making the rounds, as they will be discarded.

3. Blatant "flames", insults, personal attacks, inflammatory, impolite, partisan political commentary, profanity, sexual innuendo, or uncivil behavior will not be tolerated on the list. Please do not use your frustration or anger to privately flame other members. Remember you obtained the address from our records and we have set rules on this.

4. Anti-spam "challenge and response" email systems are not compatible with our free exchange of email messages and those using them will be precluded from participating.

5. WebWhispers list will not be indirectly or directly involved in the sale/transfer of medical products between individuals. Any messages relating to these will be rejected. Messages on non-restricted products may be listed on the WWForum Message Boards.

6. We do not allow topics in our email list related to smoking or anti-smoking, why the government and/or tobacco firms are evil, whether people have a right to smoke, what did/did not cause our cancers or who/what is to blame.  We do allow those discussions in our WW Forum Message Boards.

 

NOTICES OF CHANGES

 

1. Email distribution list changes: Note at the bottom of each email you receive through the distribution list, there is a special link for you to use to unsubscribe, switch to/from digest, get on/off vacation or change your email address. Before forwarding that message, remove this personal record or anyone can use it to adjust your list records.


2. Membership record and roster: All notices of changes to your membership record should be changed by filling in an Update. See the upper right of the home page of the website for "How to Join or Update", http://webwhispers.org/


3. Death notices sent in for WW member should not be sent to the list but should be sent directly to Listmgr@webwhispers.org so that records may be changed, a notice sent in our weekly report to the list, the family contacted and the member's name added to our memorial page. Our Membership changes are reported in the weekend report and include new members, deceased members, and a copy of our main passwords for the members areas.

 

OTHER ORGANIZATIONS AND AFFILIATIONS


1. Some of our laryngectomee members also enjoy a "sales, consultant, or marketing relationship" with various laryngectomee-related vendors. Any member, who is in such an arrangement with a vendor, should disclose that connection when writing to the membership concerning that particular vendor's products or making comments about a competitor's products.

2. Advertising by vendors is not allowed with occasional exceptions for special or new products. Write to: Listmgr@webwhispers.org


3. Notices of Regional meetings shall be restricted to simple notices using URLs to refer to web sites for details. No selling of advertising for programs or reminders for our members to sign up for a local event will be allowed. We now have a Current Notices page for listing information, http://webwhispers.org/about/currentnotices.asp. Please send your information to webmaster@webwhispers.org for web postings.


4. No vendor, other club, or organization shall use WebWhispers email lists as their method of communication with our members. Since we are an IAL affiliated club, standard notices fromthe IAL, that normally go to the club officers of any IAL club, should be sent to our WW officers for our distribution. Scheduling announcements relating to the Annual Meeting and Voice Institute will be allowed and it will also be found on our Current Notices page.

5. Local laryngectomee clubs, may not use the mail list or our membership roster for a direct list mailout for the local club.

On our website under Services, we have a page for listings and notices of Local Club Meetings. http://webwhispers.org/services/LocalClubList.asp  Any local club affiliated with the IAL has a link to their Club section where they should have posted the latest info on that club.

Other clubs are welcome to send us the information for contacts and meeting schedule and we will insert that with the club name on the Local Clubs page..

You may also enter news of your local club in the WW Forum,along with any club meeting reminders andinvite members in your area to join your organization. You may also use our Facebook Group.

We will relax the rules enough that if you wish to check the weekly report of new members and send a private email invitation to anyone living in your area to visit or join your organization.  However, please do not just take an email address from our roster or new member's list and add it to a standard mailout without asking permission of the person.  That would be spam.

 

MODERATORS


Every message goes through a Moderator and may be rejected or discarded if the above guidelines are not followed. Our moderators will be in charge of what goes on the list and are instructed to ask the Moderating Committee if it is not absolutely clear what to do with a message.

 

REFERRNG TO MESSAGE BOARD/FORUM

1. If your topic is one that is clearly not related to the purpose of the group or calls for a lot of discussion and perhaps heated disagreement, put it on the Message Board/Forum, which is much less restrictive than the Email list. You may join the Forum under the Forum section in the Members Area of the WW website.


2. Our vendor/supplier members may list specials, advertise sales, or introduce new products on the Message Board section of the WW Forum.


3. To safeguard the membership, no solicitation of funds for any person or organization, except for bona fide WebWhispers projects, may be sent via our WebWhispers Email Lists but may be posted on the Message Board section of the WW Forum. Equipment requests must go through the Loan Closet. All such requests for funds or equipment sent to either of the Email Lists will be rejected or discarded by the moderator.

 

End of Basic Rules

 


 

 

Hints for Communications within WebWhispers - The E-Mail List

New members ---

This is what our Welcome message says about emails: You are being subscribed to our moderated WebW list and you will begin to receive incoming email from our email distribution list. Emails, on laryngectomee-related subjects, are sent, simultaneously, to all list members. Please keep those emails on topic, courteous and to the point. Do not return the entire message to which you are replying and send personal messages directly to the individual. We do not permit attachments, imbedded graphics, or using the list for commercial purposes. List address for publication is webwhispers@mail-list.com.  Email must be sent from a member address.

Here is the way you communicate with us via the email list:

THE DISTRIBUTION LIST FOR EMAILS - SENDING EMAIL
You send an appropriate email from the address you gave us for yourself and it will be delivered to the mailboxes of all enrolled people including you (the current size of the emailing list is near 1900 email addresses.)

1. Send an email, addressed to: webwhispers@mail-list.com
2. Give it a subject that relates to what you are going to say.
3. Write your message into the body of the email
4. Sign it so we have your name. (email addresses do not always tell who is writing.)

5. Under your name, you may add the year of surgery or your city or state for added info.

6. Send it.......

It must clear the management of our lists as coming from a registered member; then,goes to our moderators and after approval, on to the list and will come through in the 12 hour, 2 Daily Whispers Digest.... roughly Mid-night and Mid-day. You may get answers directly to your mailbox from other members or in the next Daily Whispers.

REPLYING TO A MESSAGE IN THE DAILY WHISPERS:

At the bottom of the particular message you would like to reply to, there are two choices:

1. Click on Reply to Sender and it will bring up an email addressed only to the sender with their subject. (you can add list address if you also want it to go to the list.)

2. Click on Reply to List and it will bring up an email addressed only to the list with that same subject.

You can always just address a new email...if your email system does respond

this way. It says Send List Emails to: webwhispers@mail-list.com.

You may also change the subject if you want to write about something different.

 

HOW YOUR MESSAGES GO ASTRAY

1. If you send "from" any other of your addresses, the computer doesn't know who you are and it doesn't go thru.

2. If you send "to" any address other than: webwhispers@mail-list.com, it will not find the list. 3. No subject, the computer stops it and we never see it.

4. If you try to reply by hitting reply or reply all on your email program then the new email
subject comes up with the Digest address.. (highlight, delete and fill in appropriate subject. The Digest # subject has no meaning and will not go through.)

5. If you mark anything of ours Spam, you are dropped from the list entirely and a notice is sent. You must answer to get back on the list. This also does some damage to webwhispers to be labeled spam.

6. Some seem to try filling in another application with a message at the bottom will get to everyone. Not so. Write an email, as described.

7. Writing to our other webwhispers addresses or to any volunteer personally for them to
enter a message for you does not work. If we enter your message, it shows and our message and the answers come to us... Send an email, as described.

Send comments to listmgr@whispers.org and it goes to 4 of us to solve the problem. Thanks for reading and I hope this helps. You might print it out for reference.

Pat Sanders
Lary 1995

 


 

A private, confidential, email list of WebWhispers Members

Purpose and Guidelines

 

The purpose of the WebWhispers [WebW] Email list is the sharing of knowledge and experiences among laryngectomees, caregivers, family, friends, and medical personnel. Your questions, answers, and comments should be relevant to laryngectomee rehabilitation, support and assistance. Subjects for discussions should relate to diagnosis and treatment of cancers, learning to live as a laryngectomee, methods of communication, WW administration notices or discussions of WW issues and activities. Our list is moderated and emails not appropriate will be rejected or discarded at the moderators discretion. See list guidelines below.

 

A letter from one of our members tells how he feels about it:
The vast majority of posts are written by Larys in a non-professional, non-medical format expressing their individual experiences, problems and solutions. It is this "informal" format that allows problems, specific to laryngectomees, to be addressed by those who have found solutions. Many times these have not been adequately addressed by the medical community. Most often, this is done in a "This is what works for me" approach as opposed to "This is THE answer to your problem" method. I believe this to be the essence of the way the site works and why it is so successful.

How our list works

List emails are sent to you through a "Digest", where you typically receive two emails a day from the WebWhispers list emails of the previous 12 hours (Subject is Webwhispers Digest year/issue#). It contains an index of the emails and is easy to scroll down, pausing at the ones you wish to read. They are sent in plain text and separated by a line.

An alternative to the "Digest" version is also available where subscribers will receive emails individually, as they come to us.


------------------------------


You may read or search all messages sent via the WebWhispers list, from Dec 2005 to current date. The archives have search capabilities and the email address is at the bottom of every email you receive through the list, protected with the same information as you use to enter the web site 'Members Area'.


Please remember that these lists contain private information and are not to be shared with others or to be used for personal profit or commercial reasons. All issues relating to subscribing, unsubscribing, rules, suggestions or complaints relating to the email list should be addressed to the List Managers at Listmgr@webwhispers.org


If there are any questions please feel free to contact us.


Enjoy,
~Michael Csapo
~VP Internet Activities
~WebWhispers, Inc.


 

WebWhispers (WebW) Guidelines  for list

 

Members are expected to comply with the following guidelines:

 


ORIGINATING EMAILS:


Address to webwhispers@mail-list.com
Our list is plain text and will not accept attachments.


1. BASIC - Keep your message clearly stated, 'reasonably' brief and to the point but give enough information so we can understand the situation. When appropriate, use URLs (web site addresses) to direct members to other sites for information rather than copying masses of information that will go into everyone's computers.

2. SUBJECT - Your emails must have a subject that is descriptive of what you are sending. The computer returns those with a blank subject line or bounces those using the Digest # as a subject, and sends you a standard response regarding subject lines. We never see it.

3. NAME - We expect the courtesy of a signature from the person writing the message. Moderators will likely remind you with a note if you forget. Most members sign with name, year of surgery or where they live. This is permissible and appreciated. You may list your email address again if you wish. We will not allow your private addresses, telephone numbers or personal websites. Businesses (our vendor members) will be allowed their signature and website address. Volunteers with WW will be able to sign with their position and the WW email address, if needed.

4. COMMUNICATE CLEARLY - Use format of upper and lower case letters. A “spell-checker” is recommended and good grammar helps understanding. Please do not use all caps.

5. BE COURTEOUS AND POLITE - Treat others as you would want them to treat you. We are participating to learn, share, and have a constructive exchange of information.

6. PRIVATE MAIL - Send direct to the person you wish to reach with personal messages, holiday greetings, "thank you" notes, comments, or congratulations. Notices and letters of any kind which might copy your private mailing list to the entire WebWhispers list membership will be discarded. Remove our address from your group mailings.

 

REPLYING TO WW EMAILS:


Address to webwhispers@mail-list.com if it is for the entire list.
Address to the 'member only' if it is personal
.

Address to both if you are replying to the person with information  also useful to others


The original list message you are answering will now be truncated by the computer, if sent back with your reply to the list or if it doesn't truncate, it will be rejected and you may clean it off and send your new message again. Be sure to check what is attached to your message before sending. You might “copy and paste” a short excerpt from the original email.

 

POTENTIAL PROBLEMS TO AVOID WHEN SENDING EMAILS



1. Our system accepts only plain text and will reject attachments of any kind. The decorated stationery and figures will not come through and if they are “attached” or “embedded” in your email, your message could be lost. Do not send files or photos.

2. Do not forward emails containing multiple addresses, headers, footers, unreadable junk emails, chain letters, virus warnings, letters, jokes or stories making the rounds, as they will be discarded.

3. Blatant "flames", insults, personal attacks, inflammatory, impolite, partisan political commentary, profanity, sexual innuendo, or uncivil behavior will not be tolerated on the list. Please do not use your frustration or anger to privately flame other members. Remember you obtained the address from our records and we have set rules on this.

4. Anti-spam "challenge and response" email systems are not compatible with our free exchange of email messages and those using them will be precluded from participating.

5. WebWhispers list will not be indirectly or directly involved in the sale/transfer of medical products between individuals. Any messages relating to these will be rejected. Messages on non-restricted products may be listed on the WW Message Board/Forum.

6. We do not allow topics in our email list related to smoking or anti-smoking, why the government and/or tobacco firms are evil, whether people have a right to smoke, what did/did not cause our cancers or who/what is to blame.  We do allow those discussions in our WW Message Board/Forum

 

NOTICES OF CHANGES

 

1. Email distribution list changes: Note at the bottom of each email you receive through the distribution list, there is a special link for you to use to unsubscribe, switch to/from digest, get on/off vacation or change your email address.


2. Membership record and roster: All notices of changes to your membership record should be changed by filling in an Update. See the upper right of the home page of the website for "How to Join or Update", http://webwhispers.org/


3. Death notices sent in for WW member should not be sent to the list but should be sent directly to Listmgr@webwhispers.org so that records may be changed, a notice sent in our weekly report to the list, the family contacted and the member's name added to our memorial page.

 

OTHER ORGANIZATIONS AND AFFILIATIONS


1. Some of our laryngectomee members also enjoy a "sales, consultant, or marketing relationship" with various laryngectomee-related vendors. Any member, who is in such an arrangement with a vendor, should disclose that connection when writing to the membership concerning that particular vendor's products or making comments about a competitor's products.

2. Advertising by vendors is not allowed on the List. The Forum is open to specials, ideas and suggestions.


3. Notices of Regional meetings shall be restricted to simple notices using URLs to refer to web sites for details. No selling of advertising for programs or reminders for our members to sign up for a local event will be allowed. We now have a Current Notices page for listing information, http://webwhispers.org/about/currentnotices.asp. Please send your information to webmaster@webwhispers.org for web postings.


4. No vendor, other club, or organization shall use WebWhispers email lists as their method of communication with our members. Since we are an IAL affiliated club, standard notices that normally go to the club officers of any IAL club should be sent to our WW officers for our distribution. Scheduling announcements relating to the Annual Meeting and Voice Institute will be allowed and it will also be found on our Current Notices page.

 

MODERATORS


Every message goes through a Moderator and may be rejected or discarded if the above guidelines are not followed. Our moderators will be in charge of what goes on the list and are instructed to ask the Moderating Committee if it is not absolutely clear what to do with a message.

 

REFERRNG TO MESSAGE BOARD/FORUM

1. If your topic is one that is clearly not related to the purpose of the group or calls for a lot of discussion and perhaps heated disagreement, put it on the Message Board/Forum, which is much less restrictive than the Email list. You may join the Forum under the Forum section in the Members Area of the WW website.


2. Our vendor/supplier members may list specials, advertise sales, or introduce new products on the Message Board section of the WW Forum.


3. To safeguard the membership, no solicitation of funds for any person or organization, except for bona fide WebWhispers projects, may be sent via our WebWhispers Email Lists but may be posted on the Message Board section of the WW Forum. Equipment requests must go through the VP Member Services and/or the Loan Closet. All such requests for funds or equipment sent to either of the Email Lists will be rejected or discarded by the moderator.