annual reports

 

 

WebWhispers Semi-Annual Reports

WebWhispers officers are required by the bylaws to file semi-annual reports to the membership.  You will find the history of our growth in these current and past reports.

 

2012 reports

 


WebWhispers, Inc. 

2012

 

Semiannual Officers' Report to the Membership

July 1 - December 31, 2012

    

 

President's Report: July 1 - December 31, 2012 - Pat W Sanders

WHISPERS ON THE WEB, Our monthly newsletter -

Donna McGary and I, with the assistance of Stacy Spangler, who is working with us are getting the current issue online and we are still on our regular schedule of publishing on the 1st day of the month. Jack Henslee's column, Speaking Out, and Len Hynds, with his poetry and prose, have been joined by Frank Klett, who is doing a marvelous job on a new monthly Computer column, Bits, Bytes and NO Butts. Jack H is working on another one to have regularly

VoicePoints, our professionally written column, coordinated by Jodi Knott from M.D. Anderson Cancer Center has had great information for both professionals and for the laryngectomee or caregiver who wants to learn from the experts. We are proud to be able to present this to you.It gives us something exceptional and special.

Donna and I write monthly columns and we are happy to receive new fresh articles or photos from contributors to help complete each issue.

WEBSITE

I am very sorry to share that we lost one of our long term and faithful volunteers, our webmaster, Leonard Librizzi. I had reported prior to now that he was ill, but kept hoping he would get better. We miss him as a long term, knowledgeable lary, a caring person, a clever worker and a good friend.

We are trying to line up a few computer knowledgeable people to help with posting in the Library. It helps to have a lary who has been around a while so they recognize which ones are really helpful hints! We have someone lined up to start training and will report on that next time.

For 2012 on the website numbers:
We had 336,703 webpage views for the year, and that averages over 28,000 per month.

DATABASE

Jeff Vanden Hogen has done a great job of working the database and it does tie in with his List Manager duties. He is now able to set up the charts that we use on the website and Stacy puts those on for us. We are happy that he likes this position. Michael Csapo and Sunny Bakken, also list managers, both do checking and posting. Jeanne Graden, who helped us set this up when we started our database, has come back to help with special projects.

We have over 3,200 members on our database with 2,100 member laryngectomees or patient members, 500+ are caregivers and the other 500 are SLPs, medical, and vendors. Please let us know when you change your email address so we can keep you updated and in our files. We eventually remove bad addresses from membership. A lot of new people are finding us when it really counts. Some are joining us before surgery.

You might want to check our sustaining membership. We really appreciate the few who do contribute to WW in order that we might keep up the site, Forum, Lists and other expenses.
http://webwhispers.org/donations/SustainingMembers.asp

CRUISE

http://webwhispers.org/activities/ww-cruises.asp is the index of all past cruises and the one planned. WebWhispers & Friends is sponsoring 15 Night Eastbound Panama Canal Cruise, Sailing from San Diego, CA on January 3, 2013.

Our WW sponsored cruise in Oct 2013, 7 days out of Port Canaveral, FL on Freedom of the Seas is all set up and listed on our cruise pages.

WW AT THE IAL

This year, the 2013 IAL MEETING AND VOICE INSTITUTE will be held first week in June in Spokane, WA. We will have many WW members attending and will announce more details as soon as we have them. The basic info is under Current Notices.

ELECTIONS & OFFICERS

Report for our election in November is found on our website: http://webwhispers.org/about/Elections.asp

The nominations deadline passed for our annual elections and there were no additional nominations for the open positions; therefore the nominees have been elected by acclamation to serve additional two year term of office. There is a very good reason for this happening almost every time. Our officers are working officers with a lot of responsibilities and all of them have worked with us in one department or another first before becoming an officer and in charge of running certain sections of WebWhispers. If you are interested in working with us and having a say-so in what goes on within the active running of WW, please let us know and we will find something you enjoy doing.

Congratulations to both the nominees this year and thanks to them for giving so much of themselves and their time to WebWhispers!

Vice President - VP Web Site Information - Mike Rosenkranz
Board of Directors - Terry Duga

VOLUNTEERS/OFFICERS

Just a reminder that all of our workers, writers, moderators, managers and officers are volunteers. We are always on the lookout in each of these departments for more volunteers so please let us know if you are ready, willing and available. There is not a much better life than working together with friends to help other friends. Our officers are wonderful hard working people and I can't describe what a pleasure it is to have these people in my life on a daily basis.

Pat W Sanders, President

 


 

VP Internet Activities: July 1 – December 31 2012 – Michael Csapo

EMAIL DISTRIBUTION LISTS:
As of this date, our regular list has 373 active subscribers and 36 on the vacation list. Our digest list consists of 1,124 active email subscriptions and 546 email addresses on the vacation list. Total count of email subscriptions on all lists equals 2,129. Actual member numbers would be considerably greater due to shared email accounts.
If any amongst you readers no longer wish to receive email from WebWhispers, yet wish to retain your membership, please consider subscribing to the vacation list. This task is easily accomplished on your own by utilizing the link provided at the bottom of list emails sent to your email address. Or, you may ask the list managers to assist you in doing so at the following email address:

listmgr@webwhispers.org


LIST MANAGERS:
A special note of appreciation and thanks once again to Sunny Bakken and Jeff Vanden Hogen for their role in maintaining a majority of the workload pertaining to management of our email lists, database entries, new member introductions, and maintenance of the memorial page on our website. A great deal of time and effort is put in every week by these valued volunteers and any thanks or notes of appreciation would be welcomed at:

listmgr@webwhispers.org


MODERATORS:

Harry Jensby of Athens, Georgia and Ray Clarke of Howick, Quebec, Canada, are the most recent additions to our moderator team and we are pleased to have them with us.

Your Current Email Distribution List Moderators include:

Tom Olsavicky - Chief Moderator
Ray Clarke – Moderator
Harry Jensby – Moderator
Ron Mattoon – Moderator
Michael Csapo – Back-Up Moderator
Carl Strand – Back-Up Moderator
Pat Sanders – Back-up Moderator
Jeffrey Vanden Hogen – Back-Up Moderator

In addition, all of the above serve on the Moderator Advisory Committee. Any compliments, criticisms, suggestions or comments concerning the moderators may be addressed to:
moderator@webwhispers.org


I would like to take this opportunity and extend a warm hearted welcome to all new members who are reading these reports for the very first time. The fact that you are here reading these reports signifies that you have an interest in what's going on at the executive level in our organization. A special "thanks" to all who have donated and contributed these past six months so that we may continue providing information and support to laryngectomees and their caregivers worldwide! Thank you all for taking the time and effort to read these reports. It's been an honor once again to serve as your VP Internet Activities these past 6 months.
Wishing you all continued health in 2013!

~Michael Csapo - VP Internet Activities

 


 

VP Website Info – July 1 – December 31, 2012 - Mike Rosenkranz

 

WW Library – http://webwhispers.org/library/library.asp
Our visits to other laryngectomee support sites confirm what we already knew about the WW Library. It is, by far, the finest and most comprehensive compendium of knowledge available to those seeking information on how to live following a laryngectomy. We wrote that in our last report, and we find that other sites concur with that evaluation. They refer their members to WebWhispers to learn from the WebWhispers library how to live a full life following a laryngectomy.


Dutch founded this site to guide those new to our lary world and their altered lifestyle. The mail-list is filled with the most basic questions from those who have just had their surgery and are new to our lary lifestyle. But it’s rather perplexing, and sad, to realize that so many who have been with us for so long are still asking these same basic questions. Too many volunteers have spent far too many countless hours compiling and categorizing all that library knowledge over all these years, to not have it utilized to a far greater extent than it currently is.


Our library is very well organized, and broken down by category which makes it a simple matter to find the information you need. Access the library by going to the above address. Scroll down the left side of the page and click on the subject of your choice. Let us use one example. One of the most popular subjects is the one on stoma care. Click on stoma care and you will find Stoma Care - Basics, Stoma Care - Do's & Don'ts, Stoma Care - Equipment, HME (Heat/Moisture Exchange), Stoma Covers and Patterns, After Care – and the ever popular Mucus Problems. There are many other subjects, all with sub-categories as in Stoma Care, but if you don’t find what you want, scroll to the bottom of the list to the Google search engine.

The Search is pre-set to search our website, but can be changed to search the World Wide Web. Here is a suggestion to familiarize yourself with the search engine. Start by typing in the following words, My Nose is just an Ornament. Click on search. The search engine will take you directly to My Nose is Just an Ornament, where you will see a gray box with one word HERE. Click on that box and it will open to MY NOSE IS JUST AN ORNAMENT – PLEASE APPLY OXYGEN TO STOMA – THAT’S THE LITTLE HOLE IN MY NECK. Print out at least three copies and take them with you whenever you go to the hospital. I always insist they put one on the front of my chart, another on the wall above my bed, and one on my chest, so that when I go in for a procedure, everyone sees it. And I never let them take my Servox, until I have personally talked to the anesthesiologist and am convinced he is aware I am a neck breather. Why? I’ve had that oxygen shoved up my nose one too many times. We have all seen too many medical professionals who just do not recognize a total neck breather when they see one, and we’ve seen some of the tragic results. I firmly believe we must be our own best advocate, and to do that we must educate ourselves. The WW Library is the place to do that. Make a visit to the library a daily habit. Educate yourself today. You will reap the reward tomorrow, with the knowledge you need to be your own best advocate.


Ron Mattoon, Hank Luniewski and others contribute library items, and we get additional hints from the list. We need more volunteers to do this vital work. Volunteers keep our library updated, and we are always looking for those with basic computer skills to join us in this effort. Contact us to volunteer your services. Drop us a note at library@webwhispers.org You can work at your own pace, and very often on the very subjects that interest you the most.


WW Loan Closet – http://webwhispers.org/services/loan-closet.asp


We offer loans of an electro-larynx (EL) to all WW members who reside in the US, tend to be for short periods, and are made to those members in need of a temporary replacement while their own unit is in for repair. Loans are also available to those members who are new larys and have yet to acquire an EL of their own. These loans are for a maximum of 90 days, although we will consider an extension under extenuating circumstances. The only cost to the member is for postage and insurance to ship the unit back to the Loan Closet Custodian.


We have an assorted inventory of electro-larynges, so we suggest that those who are new to our lary world, check with their SLPs to see which unit they would prefer you borrow. Whenever possible, we will furnish the preferred unit. We lend the unit to the new laryngectomee rather than to the SLP, so that the one who needs the unit becomes the one responsible for its safe return. We find many SLPs help the new patient and family work out a WebWhispers membership, so the patient can get a loaner from us. Many of these patients have become active members, educated in rehabilitation and are now helping others. We encourage them to ask questions, join the forum and learn from each other as well as from their professionals.


We are fortunate to have Logan Grayson, our Loan Closet Custodian, who maintains our inventory with the able assistance of Randy Lemster. They do a masterful job servicing and maintaining our inventory. A unit is on its way as soon as it’s requested. Those with surplus items are asked to donate such items to the loan closet, so they may be used to help members in need. Logan and Randy may be reached at loancloset@webwhispers.org

WW Forum - http://forums.delphiforums.com/webwhispers/start

The WW Forum is our socializing area. Think of it as an informal clubhouse where you can sit back, kick off your shoes, and get to know everyone as you make new friends in a relaxed, friendly setting. Our message boards are always busy. Get to know us by reading the messages that are already there. Reply or comment to those that interest you by clicking “reply” at the bottom of any message, Some members may bring their questions and problems, while others just come in, lean back in their recliners and relax. This is your clubhouse. Think of it as a haven from that busy outside world. We welcome you to enjoy it on a daily basis.


Our forum membership continues to grow, with hundreds of members. Many of you stop by routinely on a daily basis. If you are not one of the many, come on in and create a new habit. The worst thing that can happen will be that you learn about some words you never knew existed, and the best thing may be a new recipe that will contribute to your gustatory delight. You will find the latest in humor, household tips, computer and internet tips, general discussions on a multitude of subjects, and most importantly, a vendors’ folder, where you can see the latest on those products that are available and essential to your well being. Check the vendors’ folder regularly to keep updated on the latest in lary products.


There is a scheduled chat in the Forum Chat Room every Wednesday from 8-10 P.M. Eastern time. You will find the chat room at the top of any message screen, or at the bottom of the start page. Just click and join us. The chat room allows you to chat in real time with our regulars who come to enjoy social interaction with their fellow members. Everyone is welcome. This is one place where we all talk the same way. All you need is the keyboard on your computer. You must have Java enabled to enter the chat room. The chat room is available 24/7, so you are able to arrange your own chat anytime by contacting your friends and setting a time to meet them there.


Logan Grayson and Marlene Haynes are your Forum co-managers, backed up by Michael Csapo, Pat Sanders and yours truly. We are all just an email away whenever you need some help. Marlene is the most active and always finds items of interest to post. Her long-running Word of the Day and Tip of the Day are very popular as are her latest household tips. Scott Sysum is always adding to his easy-swallowing recipes, Frank from NJ (pocosdad) keeps us updated on the latest computer and internet news, and Marlene and Michael Csapo find new spots of humor to start your day with a chuckle. If you would like to find some news you never thought you needed, some thoughts on Life’s Lessons, a good laugh, a new word you never knew existed, or a recipe for a tasty treat that slides down your throat easily, then the WW Forum is definitely the place for you. Send questions and comments about the Forum to forummgr@webwhispers.org


Respectfully submitted,
Mike Rosenkranz
VP Website Information

 


 

VP Finance & Administration – July 1 – December 31, 2012 - Sunny Bakken

 

In June 2012 we completed the process of moving the bank accounts from Chase to Wells Fargo. We found that Wells Fargo branches were in more states than Chase, which made it easier for all involved. Our biggest expense during this period was the order for WebWhispers Brochures. We ordered 100,000 brochures which were shipped to various addresses for storage and filling orders. With printing and shipping the cost is about 6 cents each plus the expense of sending them on to you.

As of December 31, 2012, we had the following bank balances :

Wells Fargo - Checking $12, 241.47
Wells Fargo - Business Market Rate Savings $45,008.91

(Included in the savings account are: $10,666.65 plus $13.82 interest
Founder Dutch Helms Emergency Fund $10,680.47

Buck Martin Bequest $10,000.00, $1,000.00 to be used annually
to supplement expenses for attending the annual IAL Convention
(pertaining to Buck's instructions)

Income $7,928.97

Expenses $9,823.61

Expenses as follows:


Brochures $ 5736.43
Postage/Mailing $ 199.36
ISP Charges $ 600.00
Data Usage $ 179.40
Long Distance calls $ 10.30
Office Supplies $ 336.14
PayPal Service Fees $ 59.89

Website Posting, Stacy DeLoe   $ 1020.00
Website Maintenance, Kinetic  $ 1575.00
Distribution Mail-list $ 99.95
Resident Agent, Indiana $ 7.14

 

Donations may be made on-line using Visa, MasterCard or Discover thru PayPal:
http://www.webwhispers.org/donations/online-donations.asp

Checks should be made payable to WebWhispers and mailed to:

WebWhispers, Inc.
P.O. Box 453
Gold Hill, OR 97525

We would like to thank the members and supporters of WebWhispers for their generous donations and support. These donations keep us financially strong.

Sunny Bakken
VP Finance & Administration

 


 

VP Member Services - July 1 – December 31, 2012 - Ed Chapman

Well another 6 months is past. As the old saying goes “ How time flies when you’re having fun” So as not to waste too much of that 'fly by' time I’ll make this short.


In the last 6 months we mailed out 1245 brochures. This is a 800 more than the first 6 months of the year. That is what we like to see getting the word out there so we can help and support more Laryngectomees.We also hand out brochures at the local meetings, regional and national conventions and may of our vendors, send them out with their mailings. If you can use some brochures or are running low on your supply just send us an e-mail to brochures@webwhispers.org. Let us know how many you would like and who and where to send them and we’ll get them right out. Speaking of brochures we were down to our last few boxes so we ordered new ones and at the same time updated the look and style. We think you will like the new look. Due to the fact we have so many going out we purchased 100,000 this time. This also cut the cost of the brochures from 8 cents each to 6 cents each.


Membership, as Michael will also probably expound on, was very good. We had 141 Larys, 47 Caregivers, 23 professional (which includes SLP and other medical field professionals) and 4 vendors join during this 6 month period.


Sad to say we lost Charlie Blair. Charlie not only took on backing up the donation recognition letters for my area but was very active in other laryngectomee clubs and projects. He will be sorely missed.


We will be starting to set up committees for plans for the activities at the IAL Conference, Voice Institute and WebWhispers Dinner. If anyone is interested in serving on one of the committees, please let us know.


Again I want to remind all readers that this charitable organization, like all others, survives off of your donations. We truly appreciate any donations that are made and want those making the donation to know that their donation is tax deductible. We have set up a program that is attempting to notify all donors, either by e-mail or snail mail, of our receiving their donation, no matter how small or large, in a timely matter (we attempt to get the notification out within a week of receiving the donation). To make donations go to:

http://www.webwhispers.org/donations/donations.asp

Respectfully Submitted
Ed Chapman

 


 

Director - July 1 – December 31, 2012 - Terry Duga


It has been a wild ride this year. Better than last year, but still hectic. I made a good recovery from my small stroke in 2010. Got out of assisted living and into my own apartment. A great step up for me.


Then, my left hip decided to cause trouble. Arthritis decided to eat away the cartilidge in my hip socket making walking difficult (and very painful). I became thankful for heated car seats

(which helped keep things a little loose) and for the cane a friend had gotten for me. I know things were bad when people in the tunnel between my office building and my parking garage would come up to me and ask if I was all right.

Finally, in April, I had a total hip replacement. I would do it again in a heartbeat. The pain and discomfort were nothing compared to a laryngectomy. I went into a rehab facility after the operation and spent some time there to get up to speed. Being allowed to return home was a blessing.


A friend who is a physical therapist, reviewed my apartment and got it ready for me to maneuver. I am now back at work full time. Life is good. I am not about to run any marathons, but I can walk pretty well without a cane and well with one.


I missed the last cruise, which is, to me, very sad, but I am signed up for the next one and am looking forward to that. I also hope I can get to Spokane for the next IAL meeting. I miss seeing everyone.


So, I am thankful that the mantel of moneyman, which I wore for about 12 years, has been passed to better hands. I now try to give help setting policy as a director.

And that is the year in report.

Terry

 

 

 

Semiannual Officers' Report to the Membership
January 1 - June  30, 2012

 


President's Report: January 1 - June 30, 2012 - Pat W Sanders

 

WHISPERS ON THE WEB & WEBSITE

We are in the midst of a few "behind the scenes" changes for our website. We have our same crew but Leonard Librizzi has many responsibilities with ill or elderly to care for, along with finding that he has Rheumatoid Arthritis. He asked to be relieved of some chores and we have found Stacy DeLoe who is taking on the duties of getting Whispers on the Web online and taking care of our monthly roster updates, plus will be available for other items as needed on the website. We have always paid for our Website host and our Mail Lists to be managed for us. Now we need to start paying for some of the website work. It may mean we need to occasionally remind you that your donations are support for what we have and can do for you. Remember that everyone else, officers and workers in every area volunteer their time and often spend money from their own pockets that, many times, are never claimed on expenses.

We have regulars, for Whispers on the Web. I am Managing Editor with Donna McGary, Editor, and monthly contributors: Len Lyons, Bob Keiningham, Jack Henslee's Speaking Out. We have the monthly professional column, VoicePoints, coordinated by Jodi Knott from M.D. Anderson Cancer Center. We thank everyone else for adding to our knowledge by sending in entries for Speaking Out and articles for occasional use in WotW. We are very proud of the quality of the entries into our newsletter.

Our Library, has started to get some regular workers and we want to develop that so we continue with the work of updating sections and adding new information. Ron Mattoon, Hank Luniewski and Marilyn Sensabaugh are the newest of the regular workers and we have had several others who worked on particular subjects. We are grateful for any help.

Sunny Bakken and I do some of the regular posting on the rest of the Website and will lean toward Stacy for help in things we just don't know how to do.

On our website, we have sections listed horizontally in red that help to find what you need. Please explore these areas.
• Home • About Us • Library • Activities • Services • Suppliers • Donations • Contact Us

DATABASE

We do not have a database manager and the duties are split mostly between the List Managers.

At end of June, 2012, these are our numbers.
Account Name: CRG (602 records)
Account Name: MED (55 records)
Account Name: PAT (2,138 records)
Account Name: SLP (360 records)
Account Name: VEN (58 records)
Grand Totals (3,213 records)
I found it interesting that our grand total, after additions and deletions, has grown by 365 members last year.. one a day, every day, all year.

Some are regarded as inactive until we find out why they don't reply. Please let us know when you change your email address so we can keep you updated and in our files. We lose a lot of you because of that.

Our Sustaining Membership presently stands at 153. Last year at this time, we had 208. Less people are giving, but I believe the amounts that many are giving are larger.
http://webwhispers.org/donations/SustainingMembers.asp

CRUISE

http://webwhispers.org/activities/ww-cruises.asp is the index of all past cruises. Our #12 WW sponsored cruise is coming up January 3, 2013 and is a 15 day cruise from San Diego, through the Panama Canal to Fort Lauderdale, FL. We don't have plans made beyond that, but we get more people when we go North than when we go into hot weather. We are also looking a Trains and River Boats but they are more expensive than Cruise ships and there are less choices.

ELECTIONS & OFFICERS

The election will be coming up in November and notices will be on the list regarding the offices open. Mostly, our offices are filled by people who have volunteered to work with us and the responsibilities are such that it makes it next to impossible for anyone who doesn't want to be a "working" officer to run for office. It has just developed into that. For instance, Carla Lynch stepped in two years ago to save our necks when Terry Duga had a stroke. He was VP Finance and Administration and Carla is an accountant so knew just what to do and was willing to help. Early this year, Carla notified us that she will not be running again for this office. Sunny Bakken volunteered for the job, was well qualified, and the BOD has already voted to appoint her as Carla's replacement after the closing of the books at this half year report. She is currently one of the BOD members and a List Manager, plus helps on the website posting. We appreciate and thank both of them.

WW AT THE IAL

This coming year, 2012, the IAL MEETING AND VOICE INSTITUTE was held first week in June in Durham, N.C. Our dinner attendance was 150, mostly our members. Jan Lewin, was our speaker at the dinner and made a wonderful contribution to our knowledge of staying healthy after laryngectomy, dedicating the lecture to the memory of our Founder, Dutch Helms.

The reception, held by Bruce Med was fantastic, as always, and we love Richard Najarian for what he does every year to kick off our dinner.

At the WW Dinner ,we missed Ed Chapman, who was not well, and I know he missed being there to hand out the certificates that he had made. He worked and planned hard and then missed the event. Jeff Vanden Hogen stepped in to give those out. Richard Crum gave the Travel Grants from InHealth, Jim Lauder handed out the checks for the Scholarships. I just stayed at the mic and took over Ed's part.

Our WW Table ended up being a nice 2 tables with at least 4 people attending all day on Thursday. It was a fun and busy day from morning till the WW Dinner. Hank Luniewski did a great job for us.. kept the receipt book straight and worked with different instruments to talk, as a person who couldn't speak at all. Logan Grayson and Mike Rosenkranz had our T-shirts and products with our name on them and was showing the new cups. These were products that were given to people who made donations to WW while there. Marlene worked with Logan and Mike. Ana Marie, widow of a laryngectomee, lived in Durham and volunteered because she remembered us so favorably. She worked with the cash and receipt book all Thursday Aft. Jeff VH had his computer and was of such a help that I don't know what I would have done without him. Everything slowed down after the first day and the Dinner was over.

All of our volunteers are wonderful hard working people and I can't describe what a pleasure it is to have these people in my life on a daily basis. We had others who came by and ran errands for us, and some who came to talk to other people or to visit at the table. It was great fun!

Pat W Sanders, President

 


 

VP Member Services: January 1 – June 30 2012 – Ed Chapman


ANNUAL DINNER AND INFORMATION DESK:

The WebWhispers annual awards and recognition dinner was held on the 7th of June during the IAL annual meeting. Due to being sick I was unable to take care of my duties and will let Pat fill you in on the banquet and the information table. Thanks to all of you that stepped up to help in my absence and in particular to Jeff and Viv VandenHogan for taking care of my wife while I was down.

Another big thank you goes to Logan Grayson for hauling all the items, available at the desk, across country and saving us that extra expense. Pat also drove and brought new items for the table and an extra box of brochures for InHealth.

BROCHURES:

Since the first of the year we have not mailed out large numbers of brochures but have had many requests for small numbers.  It is impressive that many hospitals and clinics are finding out about WebWhispers and are asking for 50 or 100 to put in their handouts for new laryngectomees. It s always interesting to receive requests from either famous hospitals around the country or ones in small towns that makes us wonder how they found us.

We had a request recently from a new-to-us large hospital who checked us out on the Internet and found us comprehensive and accurate in information shared. They not only asked for brochures but are joining so they can learn more about dealing with laryngectomee patients.

I understand that a many brochures were given out at the WW information desk at the IAL with many of them going to Voice Institute students.

We have used up almost all of the last order and the new ones are being ordered, in a large quantity to save cost per unit, expected to arrive toward the end of July.

NEW MEMBERS:

Many members came to us by finding a brochure or mention of us in literature given to them by professionals or clubs. We had 147 Larys, 54 Caregivers, and 4 Vendors. The only area that was down at all was the Professional list with 19. It’s still encouraging though to see the continued growth in the professional side.

DONATIONS:

Again I want to remind all that this charitable organization survives from what you give. We truly appreciate any donations that are made and want donors to know that their donation is tax deductible.

Respectfully Submitted

Ed Chapman

 



VP Internet Activities: January 1 – June 30 2012 – Michael Csapo


EMAIL DISTRIBUTION LISTS:

As of this date, our Regular List has 403 active subscribers and 36 on the vacation list. Our Digest List consists of 1,103 active subscribers and 551 on the vacation List. Total count of subscribers on all lists totals 2,093. Actual member numbers would be considerably greater due to shared email accounts.

In recent weeks, we have changed the format of digest list emails to a HTML version. We have also renamed our list to “Daily Whispers!” Support for the new name and new format appears to be widely accepted.

If any amongst you readers no longer wish to receive email from WebWhispers, yet wish to retain your membership, please consider subscribing to the vacation list. This task is easily accomplished on your own by utilizing the link provided at the bottom of list emails sent to your email address. Or, you may ask the list managers to assist you in doing so.

listmgr@webwhispers.org

SECURITY

It was recently brought to our attention that a certain individual, who is no longer a member with us, was sending unsolicited emails to a number of our members. We suspect that this person may have illicitly scripted an email list from information provided in the Members Area of our website. For this reason, we felt it necessary to change passwords to our Members Area and also to our Daily Whispers Archives. We hope this will prevent additional email addresses from being added to this persons list. If you should receive unsolicited email from any source, you might consider clicking the “Spam Button.” But if it comes to you through a WebWhispers address, please do not mark it spam as you will be automatically removed from the list.

As an added security measure, I have also voluntarily withdrawn my monthly “New Members Announcement” from the monthly “Whispers on the Web” publication. We value our member’s privacy first and foremost and it’s just a shame that there are a few individuals out there who exploit well intended information for their own personal gain. Unfortunately, we all lose because of such self centered individuals.

LIST MANAGERS:

A special note of appreciation and thanks once again to Sunny Bakken and Jeff Vanden Hogen for their role in maintaining a majority of the workload pertaining to management of our email lists, database entries, new member introductions, and maintenance of the memorial page on our website. A great deal of time and effort is put in every week by these valued volunteers and any thanks or notes of appreciation would be welcomed at: listmgr@webwhispers.org

MODERATORS:

Recently, we have promoted Tom Olsavicky, of Yorktown, Virginia, to the position of Chief Moderator. Tom will be in charge of helping to recruit additional moderators, setting up schedules for moderators and will also assist with the training of new moderators. We hope to begin a training program for moderator recruit “Harry Jensby” of Athens, Georgia” in the upcoming weeks.

Your Current Email Distribution List Moderators are as follows:

Tom Olsavicky - Chief Moderator
Jeffrey Vanden Hogen – Moderator
Ron Mattoon – Moderator
Michael Csapo – Moderator
Carl Strand – Back-Up Moderator
Pat Sanders – Back up Moderator


In addition, all of the above serve on the Moderator Advisory Committee. Any compliments, criticisms, suggestions or comments concerning the moderators may be addressed to: moderator@webwhispers.org

Wishing you all an enjoyable summer!

~Michael Csapo - VP Internet Activities

 


 

VP Website Info – January 1 – June 30, 2012 - Mike Rosenkranz

 

WW Library – http://webwhispers.org/library/library.asp

It is gratifying to see how many of our members have availed themselves of the opportunity to learn more about our unique lifestyle by regular visits to our library, the most comprehensive compendium of knowledge available to those seeking information on life after a laryngectomy. Bookmark this link, and create the daily habit of visiting and learning in our library.

Knowledge is empowerment. Learn the intricacies of living with a stoma, especially those who are new to this lifestyle, and you will never be intimidated. Set aside a few minutes each day to read and learn, and those minutes will be returned to you multifold in the peace of mind you will acquire through your increased knowledge. Scroll down the left side of the page and check out the different categories. Take them in the order in which they appear and start to read. This will ensure you will become well versed in a broad range of knowledge. You may prefer to simply click on your subject of choice. Use whatever method works for you. Use the search engine to locate information you cannot otherwise find, and it will take you right to the area you seek.

Our volunteers help to keep our library updated on a regular basis. Hank Luniewski is updating those areas dealing with Text to Speech, Alternative Communications and Speech Difficulties, Ron Mattoon is revamping the section on Stoma Care, Marilyn Sensabaugh has committed to help in the area of posting to the web, and has started work on the section about Swallowing. Several others have worked on particular subjects. We have an urgent need for additional volunteers with computer skills to continue the work of updating sections and adding new information. This is a great way of giving back and ensuring that WebWhispers continues to thrive and grow. Please let us know you are willing to help by writing to us at library@webwhispers.org

WW Forum - http://forums.delphiforums.com/webwhispers/start

The forum chat room is an informal clubhouse where you can sit back, relax, kick off your shoes, and get to know other WebWhispers members in a relaxed, friendly setting. Scheduled chats are Tuesday and Friday at 2 p.m. Eastern. Unlike the mail-list, where you send an email and wait for replies, the chat room allows you to chat in real time with experienced larys who will be happy to answer whatever questions you may have. Our regulars come to enjoy social interaction with their fellow members, and will heartily welcome all who would like to become regulars. Try it. It will add a new dimension to your day.

The forum message boards are always busy. Read the messages that are already there, respond to those you enjoy reading, or start a thread of your own. You will find humor, scores of easy swallowing recipes in The Lary Kitchen, computer and internet tips, other tips in the Hobbies and Interests folder, plus countless other subjects. Many members bring their questions and problems, while others just come in, kick back in their recliners and relax. This is your clubhouse. Think of it as a haven from that busy outside world. Come on in and enjoy it on a daily basis.

Our forum membership continues to grow, with almost 900 members. Many of you stop by routinely on a daily basis. If you are not one of the many, come on in and create a new habit. The worst thing that can happen will be that you learn about some words you never knew existed, and the best thing may be a great new easy-swallowing recipe that will contribute to your gustatory delight. You will find the latest in humor, household tips, computer and internet tips, general discussions on a plethora of subjects, and most importantly, a vendors’ folder, where you can see the latest on those products that are available and essential to your well being. Check the vendors’ folder regularly to keep updated on the latest in lary products.

Logan Grayson and Marlene Haynes are your co-managers, backed up by Michael Csapo, Pat Sanders and yours truly. They are just an email away whenever you need some help. Marlene is always finding items of interest to post, including her word of the day. Scott Sysum is always adding to his easy-swallowing recipe collection, while Marlene and Michael Csapo find new spots of humor to start your day with a chuckle. If you would like to find some news you never thought you needed, or a good laugh, or a new word you never knew existed or a recipe for a tasty treat that slides down your throat easily, then the WW Forum is definitely the place for you. Please send questions and/or comments about the Forum to forummgr@webwhispers.org

WW Loan Closet – http://webwhispers.org/services/loan-closet.asp

Our loan closet is available to all WW members. We have an assorted inventory of electrolarynges, maintained by Logan Grayson, our Loan Closet Custodian, and Randy Lemster. Short term loans are available to WW members in need of a temporary replacement, and to new members who have yet to acquire one. Those with surplus items are asked to donate such items to the loan closet so they may be used to help members in need.

Having Logan and Randy both handling loans, and from two separate locations, ensures that requests for loans will be promptly filled since either Randy or Logan will always be available. Loan requests and offers of donations to our loan closet should be emailed to loancloset@webwhispers.org

Respectfully submitted,
Mike Rosenkranz
VP Website Information


 

VP Finance & Admin – January 1 – June 30, 2012 - Carla Lynch

 

 

 



Board of Directors - January 1 – June 30, 2012 - Sunny Bakken

 

I would like to introduce myself. I'm Sunny Bakken and have been a member of WebWhispers since 2004 as a caregiver for my husband. I started volunteering in early 2006, adding members to the new database. After becoming a widow, I remained as a volunteer and, over the years, have acquired other duties as one of the list managers and having a posting assignment on the website. My background is accounting and was asked, when we learned that Carla Lynch would be leaving the VP - Finance & Administration position, if I would step up to do the financial end of WebWhispers. I accepted and, in the interim, I have been appointed to the Board of Directors to prepare for the changeover.

A new bank account has been opened at Wells Fargo Bank with three officer signees and I have been added to the accounting@webwhispers.org email. The address for checks/correspondence mailed is now PO Box 453, Gold Hill, OR 97525. I had a good initiation since we switched the address before the WW Dinner and had all the incoming checks come to the new mail box this year.

I would like to thank the BOD for their vote of confidence and welcome.

Respectfully submitted,

Sunny Bakken, Director

 

 

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